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2017 » 4 » | Archive » Medical field » Fields » Neurology » Archive » Medical field » Fields » Pediatrics »

Transition from Pediatric to Adult Healthcare: a Look at the Challenges and Needs of People with Epilepsy and Their Families

 
Abstract:

This post is also available in: enEnglish slSlovenščina (Slovenian)

Providing health care to youth requires special attention to their developmental needs and characteristics. This applies especially to those who are chronically ill and find themselves on the verge of adulthood facing the challenges of transitioning from pediatric to adult healthcare. They are confronted with a loss of established relationships with healthcare providers and a need for building new ones. At the same time, they face greater responsibility for taking care of their health, with parents also having to change and adapt to their involvement. Young people with epilepsy deal with additional challenges. For many controlling the disease is as much a priority, as is dealing with the comorbid cognitive, emotional and behavioral difficulties often associated with epilepsy. During the period of transitioning from pediatric to adult healthcare many can benefit from a reevaluation of treatment possibilities and a sensitive assessment of the adverse effects of antiepileptic medication they may be experiencing. For the family members of those individuals with epilepsy who have difficulty taking care of themselves due to intellectual disability, the period of transitioning brings additional woes and frustrations, resulting in a need for organizational and psychological support. Providing assistance to individuals with epilepsy during their transition to adulthood therefore requires specific ways of organizing healthcare, which are presented in the following article and would be welcome in Slovenian healthcare.

Authors:
Gosar David

Keywords:
transition to adult care, epilepsy, transition clinic, adolescence, psychosocial

Cite as:
Med Razgl. 2017; 56 (4): 469–81.
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